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Welcome to the Team Page of
METABOLITES |
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METABOLITES Statistics |
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Money Raised |
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| Team Fundraising Goal: |
$15,000.00 |
| Total Raised: |
$18,667.00 |
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Members Recruited |
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| Recruitment Goal: |
100 |
| Members Recruited: |
75 |
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Join us in supporting the Metabolism Service at Tufts Medical Center and Floating Hospital for Children
This Sunday, June 14th is the 7th annual Harbor Walk & Run and the Metabolism Family Picnic!
Our Metabolism Family Picnic continues to be such a great success that we will be hosting it again immediately after the walk/run! So please join us for lunch. This is a wonderful opportunity for patients and families to meet and has become reunion of sorts as well!
Schedule of Events (please check back for updates)…..
If you are participating in the Walk/Run
9:00 to 9:30 am :
1. Check in at the Harbor Walk & Run registration table
2. Then Check in METABOLITES TEAM Table (Located at the Metabolism Family Picnic Tent across from the Moon Bounce near the beach) + Pick up METABOLITES TEAM T-shirt
9:40 am:
Join the METABOLITES for a Team Photo
10:00 am ** The Harbor Walk & Run starts!
11:30 am to 1:30 pm:
2009 Metabolism Family Picnic (located across from the Moon Bounce)
The Harbor Walk & Run is the major annual fundraising effort for our clinic. Funds raised by the METABOLITES TEAM directly support the clinic and its missions - medical care, patient education and advocacy. Our clinic currently serves over 300 patients living with metabolic disorders and 500 patients with mitochondrial diseases.
With your support we were able to have the following accomplishments this past year:
1. Metabolic Outreach Service. The Metabolic Outreach Service continues to thrive and currently occurs in six major teaching hospitals in the northeast. It remains the largest and most comprehensive teaching program about metabolic and mitochondrial diseases. Its Patient-As-Teacher Project provides patients and parents with the opportunity to speak to medical audiences at these centers. To date, 15 patients/parents representing 10 different disorders have participated as “patient-teachers” and the feedback has been extremely positive. This teaching program also encourages doctors to consider a career specializing in helping patients living with metabolic and mitochondrial disorders.
2. Symptom Guide for Clinicians about the Management of Mitochondrial Disease. We developed this manual to provide practical clinical information for health care providers so they can better participate in the care of patients living with energy disorders. Look for it at www.mitoaction.org!
We are very proud of all that we’ve accomplished and the families and patients whom we serve. However, we still have so much more to do and we need your help to continue to expand services and programs for our patients and families living with rare metabolic disorders and mitochondrial disorders.
How can you help…..
• REGISTER to walk or run with the METABOLITES TEAM
• SPONSOR our team or a registered METABOLITES TEAM walker/runner
• DONATE to the METBOLITES TEAM,
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Questions? Please contact Abby Usen at metabolites@gmail.com or 617-636-2562
(please note: you do not need to participate in the Walk & Run to come to the picnic)
THANK YOU FOR HELPING US HELP OUR PATIENTS & FAMILIES!!
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